Symptoms of Autism in Adult Women

Discover the often-overlooked symptoms of autism in adult women and dispel common misconceptions.

judah schiller
Judah Schiller
April 24, 2024
Published On
April 24, 2024

Understanding Autism in Adult Women

Autism Spectrum Disorder (ASD) is a developmental disorder that affects communication and behavior. Though it is commonly diagnosed in childhood, many adult females with autism go undiagnosed due to a variety of factors. In this section, we'll explore the gender discrepancies in autism prevalence and the common masking behaviors exhibited by autistic females.

Gender Discrepancies in Autism Prevalence

ASD is about four times more common in boys than in girls, according to the Centers for Disease Control and Prevention (CDC). However, this doesn't necessarily mean that fewer girls and women have autism. In fact, recent research shows that nearly 80% of autistic females are undiagnosed as of age 18, despite traditional estimates finding that boys are four times as likely as girls to receive an autism diagnosis. This discrepancy can be attributed to a number of factors, including differences in symptoms and masking behaviors among autistic females [1].

Moreover, autism traits may change across a lifespan, with existing studies indicating that autistic females may have better social and communication abilities in childhood but exhibit more severe difficulties in adolescence and adulthood compared to males.

Masking Behaviors in Autistic Females

Masking behaviors, or the act of concealing or altering one's social behaviors to fit in with societal norms, are more prevalent in autistic females. Researchers believe that adult females and girls are more likely to mask their symptoms of autism, especially common among females at the lower support need end of the ASD spectrum. This can make it difficult for family, teachers, and physicians to identify signs of autism, potentially contributing to their lower likelihood of being diagnosed as autistic [1].

This tendency to mask symptoms often results in a delay in diagnosis until later in life for many autistic females. It's important to understand and recognize these masking behaviors when considering the symptoms of autism in adult women, as they can significantly impact the accuracy and timing of a diagnosis.

By gaining a better understanding of the gender discrepancies in autism prevalence and the masking behaviors in autistic females, we can work towards more accurate diagnoses and better support for autistic women.

Symptoms of Autism in Adult Women

In the realm of autism spectrum disorder (ASD), the symptoms that manifest can vary greatly. This is especially true when it comes to gender. For adult women, the presentation of autism symptoms can differ significantly from those in males, leading to unique difficulties and challenges.

Mood Issues and Cognitive Abilities

Research suggests that autistic women may experience more mood issues, such as anxiety and depression, compared to their male counterparts. One study reported that autistic females might present lower cognitive ability and adaptive functions, though these levels are similar to autistic males.

Autism traits may change across a lifespan. Existing studies indicate that, while autistic females may exhibit better social and communication abilities in childhood, they often face more severe difficulties in adolescence and adulthood compared to males [2].

Externalizing Behaviors in Autistic Females

A comprehensive 2020 research review compared behaviors between autistic males and females. It was found that autistic females were reported to have more externalizing behaviors, although the results are not definitive. Longitudinal studies are needed to better understand the diagnoses and behaviors among autistic males and females.

Females with Autism Spectrum Disorder (ASD) may express intense interests in adulthood and require detailed knowledge on various subjects. They may choose careers and hobbies that demand intense focus.

Autistic adult females may also experience sensory sensitivities, such as a heightened sense of smell, light, sound, or touch. These sensitivities can lead to sensory overload and difficulties with sleeping [2].

These symptoms of autism in adult women are, however, often masked or internalized, leading to a lack of proper support. Many women may not know they are on the spectrum until they reach adulthood [1]. This demonstrates a clear need to improve awareness and understanding of these symptoms to ensure timely diagnosis and support.

Challenges in Diagnosing Autism in Adult Women

The recognition and diagnosis of autism in adult women present significant challenges due to a variety of factors. These include camouflaging behaviors, late diagnoses, and the impact of sensory sensitivities on daily life.

Camouflaging and Late Diagnoses

One of the primary factors contributing to the delayed diagnosis of autism in adult women is the tendency to camouflage or mask symptoms [1]. Camouflaging is more prevalent in females, particularly those at the lower support need end of the autism spectrum. This masking behavior often leads to a lower likelihood of females being diagnosed as autistic, as their symptoms may not be immediately apparent or may be misinterpreted.

In fact, research indicates that females with Autism Spectrum Disorder (ASD) camouflage their symptoms more than males with ASD, which could potentially contribute to the disparity in prevalence between males and females. This camouflaging is not associated with social phobia but correlates negatively with emotional expressivity in females with ASD.

The pressure to fulfill societal roles such as being daughters, mothers, or wives often exacerbates this tendency to camouflage in women with autism, leading to potential loss of self.

Sensory Sensitivities and Daily Life Impact

Another challenge in diagnosing autism in adult women is understanding the impact of sensory sensitivities and related symptoms on daily life. Many women with autism experience difficulties with self-regulation, executive function, intense interests, and repetitive behaviors. These co-occurring conditions can significantly impact daily functioning and quality of life, yet they may not be immediately recognized as symptoms of autism [2].

Moreover, autistic individuals often interpret the world differently from non-autistic people, leading to differences in social communication styles. This divergence can sometimes result in misunderstandings, where autistic individuals may be perceived as rude or uncaring unintentionally [5].

These challenges highlight the need for more research and understanding of autism in adult women. Increased awareness and knowledge can help ensure timely and accurate diagnoses, enabling women with autism to receive the support and resources they need to thrive.

Well-Being and Identity of Autistic Women

Understanding the well-being and identity of adult women with autism requires delving into the effects of timely diagnosis and the challenges faced due to lack of support and educational hurdles.

Impact of Timely Diagnosis on Well-Being

A timely diagnosis can have a significant impact on the well-being of adult women with autism. According to a study published on NCBI, there was a noticeable difference in well-being across groups at different stages of their diagnostic journey. The study found significant differences in three domains: satisfaction with health, psychological health, and environmental health.

Validation was a central issue for all the women in the study, impacting their diagnosis, identity, and overall well-being. The study highlights the importance of a timely diagnosis for improving the well-being of women and girls with autism. In contrast, those who remained undiagnosed experienced worse outcomes.

Lack of Support and Educational Challenges

For many women with autism, a lack of support throughout their lives, especially during their school years, is a common experience. Many reported instances of bullying, feeling out of place, and a lack of understanding from others. They were often not supported as people presumed there was 'nothing wrong with them'. School is identified by some as the place where they began to 'mask' their symptoms to fit in.

Participants from all stages of the diagnostic journey reported a need to educate the wider population about autism. They felt the need to become 'professionals' in the field due to what they perceived to be a widespread lack of understanding and prevailing discrimination against autistic individuals.

Navigating the symptoms of autism in adult women involves addressing these challenges, from timely diagnosis to providing the necessary support. It's essential to foster an environment of understanding and acceptance, empowering women with autism to lead fulfilling lives.

Camouflaging and Social Interactions

In the context of autism, social interactions can often be challenging due to the unique ways in which autistic individuals interpret the world. This is particularly true for adult women with autism, who often face additional pressures from societal expectations and roles.

Social Expectations and Camouflaging Tactics

One of the significant challenges faced by women with autism is the pressure to conform with societal expectations. This pressure often leads these women to resort to camouflaging tactics to navigate their social roles as daughters, mothers, or wives while managing their autistic needs. Regrettably, this camouflaging can contribute to a potential loss of self as they strive to appear 'normal' in social situations.

Interestingly, women with autism tend to use more and different camouflaging tactics compared to men. However, the use of camouflaging is linked to mental health issues such as depression and anxiety, revealing the hidden costs of this coping strategy [4].

In addition, autistic individuals often interpret the world differently from non-autistic people, leading to differences in social communication styles. This difference in perception can sometimes result in misunderstandings where autistic individuals may unintentionally come across as rude or uncaring.

Pressure to Fulfill Societal Roles

The societal roles that women are often expected to fulfill can be particularly challenging for women with autism. The functioning label of "high" or "low" functioning autism is frequently inadequate and misleading, as it fails to account for the variability in an autistic person's ability to cope with different situations. This label can also lead to negative messaging and unrealistically high expectations, depending on how an individual is classified [5].

Furthermore, many women with autism report a lack of support throughout their lives, especially during their school years. Often, they become targets of bullying and receive little to no support as people perceive them as 'normal,' which leads many of them to start masking. This lack of support and understanding can have lasting effects on their mental health and self-esteem.

In the face of these pressures and challenges, it becomes crucial to raise awareness about the distinct experiences and needs of women with autism. Providing appropriate support and understanding can help these women navigate societal expectations and roles without losing their unique identities or compromising their mental health.

Misconceptions and Realities about Autism

Despite growing awareness, several misconceptions about autism persist, particularly in the context of adult women. Unraveling these misconceptions is key to understanding the realities of how autism manifests in women, affecting aspects like sexual relationships, gender diversity, employment skills, and social communication styles.

Sexual Relationships and Gender Diversity

Autism does not limit an individual's ability to engage in sexual interactions or form intimate relationships. Autistic people, including women, are sexual beings and engage in relationships, marriages, casual sex, and various other sexual interactions, as reported by the Organization for Autism Research.

Additionally, people with autism can identify as queer or gender diverse. While some autistic individuals may be asexual, it's crucial to understand that this is not applicable to everyone. Thus, the spectrum of sexual orientations and gender identities among autistic women is as diverse as in the general population.

Employment Skills and Social Communication Styles

Contrary to the misconception that autistic individuals struggle with finding employment, many autistic people can work and be highly skilled employees. They often bring valuable skills to the workplace, such as honesty, enthusiasm, attention to detail, and a strong work ethic.

Autistic individuals often interpret the world differently from non-autistic people, leading to differences in social communication styles. This can sometimes result in misunderstandings where autistic individuals may be perceived as rude or uncaring unintentionally.

Another misconception is that nonverbal autistic individuals have an intellectual disability. However, many nonverbal autistic individuals are highly intelligent and use communication devices to express their thoughts.

Lastly, the functioning label of "high" or "low" functioning autism is often inadequate and misleading, as it fails to account for the variability in an autistic person's ability to cope with different situations. This label can also lead to negative messaging and unrealistically high expectations, depending on how an individual is classified.

Understanding these realities is crucial in addressing the challenges faced by autistic women and ensuring their needs are met in all aspects of life.

References

[1]: https://www.healthline.com/health/autism-in-women

[2]: https://www.uclahealth.org/news/understanding-undiagnosed-autism-adult-females

[3]: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6753236/

[4]: https://www.psychologytoday.com/ca/blog/women-autism-spectrum-disorder/202104/how-men-and-women-experience-autism-differently

[5]: https://researchautism.org/blog/an-autistic-woman-addresses-9-common-misconceptions-about-autism/

[6]: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9666868/